I have a two month old patient, whose bed is way too big for and who hasn’t cried in my presence once. She has blue eyes, which I could barely see through her constantly dilated pupils. Her skin is whiter than snow and colder than ice. She’s not responsive. She has more peripherals connected to her body than a body of that size should handle.
My two month old patient, precious and young as she is, is brain dead.
For a while, my friends and I lamented her young life. She is a person who will never live. She will never utter the words mom, she will never walk, she will never ride a bike. She will never even have solid food. Why was she being kept alive? Why was she being put in such pain?
The medical aspect in us couldn’t understand the point of keeping life tethered to that girl. It didn’t make any sense. There’s no way she will wake up again. There’s no way she will recover. For all matters and purposes, that girl who has lived for two months exists no more.
But still, her parents kept her alive adorning her bed with rosaries and religious icons as they prayed by her bedside.
“I know it’s over,” I overheard her mom say while crying. “But I’m hoping He’d look down at her and see how such a precious creature she is and help her.”
And the mother would ask us: what will happen if things worked out with her? What will you see? Isn’t she snoring? What is that sound?
We’d answer in a way to stay true to the medicine without squashing her hopes. Hope, in this case, is a double-edged sword.
They were waiting for a miracle. My friends would even chuckle at the thought. But even though I also thought it was absurd, I just felt terribly, terribly sorry for what that mother had to go through, seeing her daughter’s shell in front of her: alive but not.
I’ve been thinking about miracles ever since I was allocated that little girl. While they round on other patients and they reach her case, I often find myself thinking about the miracle she is waiting for. I don’t get miracles. I don’t know if I believe in them. I think I don’t. But if there’s anything about miracles that I’m sure of, it’s that they are unjust.
Then I thought about what I’d do if I had been the father whose daughter was in my patient’s bed, with tubes going out of her in order to keep her alive. My answer would have surely been a resounding: turn it off. Purely medical. Pure electrolytes. Pure CT scans. Pure EEGs. Pure data. Or so I thought.
Today, as I saw that woman crying over her daughter, I didn’t pity her. I was utterly shocked that what she was doing didn’t feel odd. It didn’t feel weak. It didn’t feel like something I would remotely try to ridicule, like many people I’ve encountered would. Because the shocking revelation was that I’m not so sure I can turn it off, in spite of al the data.